CJI Chandrachud’s daughters are suffering from this disorder, know its symptoms and prevention

CJI Chandrachud Daughter’s Disorder: Chief Justice of India i.e. CJI Chandrachud has come into discussion these days. Recently, Chandrachud has talked about this issue by revealing the congenital and rare disease of his two daughters. CJI told that his daughter is a victim of a disorder called Nemaline Myopathy. This is a congenital disorder for which there is no cure. Let us know about what this disease is and what are its symptoms.

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What is nemaline myopathy?

Health experts say that nemaline myopathy is a congenital disorder in which problems related to muscles occur. In this disease the muscle protein starts getting destroyed. This disease badly affects the muscles and it becomes difficult for the patient to move.

This disease affects the muscles around the neck and jaw due to which the patient faces difficulty in breathing, swallowing, eating and even speaking. Let us tell you that at present there is no cure for it and this disease is so rare that it affects only one in fifty thousand people.

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Symptoms and treatment of nemaline myopathy

This disorder is congenital and develops as the child grows. When children fall prey to this disease, their muscles start becoming weak. He faces difficulty in walking. The child feels a lot of pain while speaking. Sometimes, due to weakening of muscles, even the shape of the child’s face changes.

When the muscles become weak, the joints of the body start tightening due to which the child feels pain while moving. He also starts having difficulty in getting up and sitting. Talking about treatment, no cure is possible for this disease. But with the help of physiotherapy its symptoms can be controlled. When the condition worsens such that the patient is not able to breathe, then the help of ventilation is taken. Patients are also helped through speech therapy.

Disclaimer: Some of the information given in the news is based on media reports. Before implementing any suggestion, you must consult the concerned expert.

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